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There are many different modalities and activities that have been successful in progressing Michael, our patient with SMA, towards reaching his goals of less pain during activities as well as increased independence. Over the past four years, we have attempted many different techniques with Michael and have noted the ones…
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The U.S. Food and Drug Administration (FDA) has granted the designation of rare pediatric disease to SRK-015, an investigational treatment for spinal muscular atrophy (SMA), its developer, Scholar Rock, announced. This designation is given to therapies that are intended to treat serious or life-threatening disorders…
In previous articles, we have discussed different techniques for manual stretching to improve functional mobility and range of motion for Michael, my patient with SMA. We have discussed the importance of maintaining and increasing range of motion in joints such as ankles, knees, hips, elbow, hand, and cervical spine. These…
As we’ve discussed in previous articles, most patients with SMA sit in a wheelchair all day, therefore increasing the likelihood of experiencing increased swelling in their feet and ankles. For able-bodied individuals, when they walk, their legs are in a gravity dependent position, and there is a natural…
As we have previously discussed in earlier articles, wheelchairs play a main role in the daily lives of many patients with SMA. Over the past ten years, wheelchairs have changed for the better, and now have many customizable options available that can very much benefit the patient. Things such as…
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