SMA HCP News November Round-up: Risdiplam, Early Treatment, NURTURE Study

While the biggest news this week may be the success of the drug risdiplam in improving motor function in a late stage clinical trial on patients with SMA types 2 and 3,1 other important data on SMA have also been published in recent weeks. Below is a roundup of new...

Spinal Muscular Atrophy: Late October 2019 Roundup

Data on SMA continue to roll out. This month has shown a growing focus and understanding on issues related to nusinersen as well as newborn screening for SMA across the globe. In addition, more preclinical and translation results have been published.  Below is the...

Performing An Assisted Bridge Exercise For Patients With SMA (Part 1)

With a patient like Michael, who has SMA, it can be a challenge to continue growing their treatment plan by presenting new exercises that help them reach their goals.  Often times we resort to starting a new exercise and modifying it depending on Michael’s...

Spinal Muscular Atrophy: Mid-October 2019 Roundup

The beginning of fall has seen a steady stream of new data elucidating SMA mechanisms, as well as options for managing and treating the disease. There have also been reports of evolving efforts to optimize both SMA research and clinical care, such as through a new...

Spinal Muscular Atrophy: Late-September 2019 Roundup

Summer has closed with new data and news on SMA coming to the fore. Much of the research on SMA published in recent weeks has focused on how to best treat the disease, and some new debate has emerged surrounding the relative advantages of Zolgensma versus Spinraza....

Letting Physical Therapy Students Work With SMA Patients

Students must perform multiple clinical rotations before they graduate PT or PTA school. When students come into our outpatient clinic, they are exposed to a wide variety of diagnosis. One that always baffles them is SMA. In most cases. SMA is briefly taught about in...
kiwifruit extract and SMA

SMA August Roundup: green kiwifruit extracts, abnormal fatty acid metabolism & updates on nusinersen and AVXS-101

Summer is closing with an abundance of new data on SMA. Studies aimed at understanding the disease process continue to provide information on its underlying mechanisms. At the same time, careful investigations of therapeutics are highlighting the potential of these...

Stretching Lower Extremities of SMA Patients

Your typical SMA patient spends much of their day sitting in a wheelchair. While this may be normal for them, it can cause problems with muscle tightness and soreness during their typical day. My patient, Michael, was diagnosed with severe hip, muscle, and nerve...

Transferring A Patient With SMA During Therapy

  While the majority of students in physical therapy learn how to transfer patients in school with many different assistance requirements, patients who suffer from spinal muscular atrophy usually present more of a challenge than many physical therapists come...
nutrition in SMA

Key to a Healthy SMA Diet is Variety

Diet is one of the key factors for healthy growth and development in children with spinal muscular atrophy (SMA).  Often, the quality of the overall diet may be overlooked in favor of a single nutrient or food that comes with curative claims.  Over the last few...

Latest Articles from SMA HCP

Spinal Muscular Atrophy: Late October 2019 Roundup

Spinal Muscular Atrophy: Late October 2019 Roundup

Data on SMA continue to roll out. This month has shown a growing focus and understanding on issues related to nusinersen as well as newborn screening for SMA across the globe. In addition, more preclinical and translation results have been published.  Below is the...

SMA Patient Columns

My Experience with the JACO Robotic Arm

Throughout my life, I have required assistance with the most basic tasks. Things like scratching my head, getting myself a drink, or picking something up off the floor are just a few items on a never-ending list of impossibilities. Fortunately, there is now...

The Amino Acid Diet and Its Benefits

Nutrition has always been a challenge for my daughter, Ella. And, in turn, it is a challenge for my wife and me. Due to Ella's disease, she has an increased amount of difficulty digesting long-chain fats (meats, cheeses, etc.) and she also has a hard time maintaining...

Newly Added HCP Resources

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