Safety For Both Therapist and SMA Patient

While working with a patient with SMA, you may find it beneficial for the patient, as well as the therapist, to have at least two people available to help in the treatment if you plan to transfer to a therapy table for different...

Improving Muscle Length to Prepare For Future SMA Muscle Targeted Therapy

In preparation for a muscle-targeted treatment, which is currently under development by Scholar Rock for patients with SMA, we have continued to work to maintain the strength improvements Michael has made, but we have also shifted to...

Helping To Control Swelling In Lower Extremities For SMA Patients

Swelling in the lower extremities is a common occurrence in people who are diagnosed with SMA, secondary to different reasons. Some reasons include lack of muscle contraction and the ability to pump fluid out of their feet, as well as...

Q&A Between Physical Therapist and SMA Patient

Michael and I have been working together for the past couple of years, and while speaking with each other about my March HCP article, we thought that doing a question-and-answer article would be interesting. Michael would ask me 5...

Using Dry Needling To Relieve Muscle Spasms For SMA Patients

Dry needling has been a popular treatment in the world of physical therapy for the past few years and is continuing to gain popularity with more research being performed. There are many different reasons to use dry needling to improve...

Motor Function, Breathing Important in Choosing Treatment

Improvement in motor function, breathing, and ease of administration are among the factors that people with spinal muscular atrophy (SMA) and their caregivers value most when deciding on available treatments, a new study reports. The...

Spinraza Shown to Preserve Respiratory Muscle Strength in SMA Type 2 Patients

Spinraza (nusinersen) effectively preserves respiratory muscle strength in addition to motor function in children with spinal muscular atrophy (SMA) type 2, according to a real-life, small study in France. Larger studies are needed to...

Transitioning SMA Patients From Older Wheelchairs To Newer Wheelchairs

Transitioning from one wheelchair to another can be especially difficult for people with SMA. Most of the time, it is suggested that you receive a new wheelchair approximately every five years. As for my patient who has SMA, he has been...

Paramedian Injection Approach Found to Ease Spinraza Administration

Administering Spinraza (nusinersen) via a particular method of injection, called the paramedian approach, can shorten procedure times and reduce the occurrence of adverse events for people with spinal muscular atrophy (SMA), a small study...

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and anxiety in people with rare diseases, negatively affecting their health and well-being, according to a survey conducted by Eurordis-Rare Diseases...

Latest Articles from SMA News Today

Safety For Both Therapist and SMA Patient

Safety For Both Therapist and SMA Patient

While working with a patient with SMA, you may find it beneficial for the patient, as well as the therapist, to have at least two people available to help in the treatment if you plan to transfer to a therapy table for different exercises. For Michael, we transfer him...

read more

SMA Patient Columns

My Experience with the JACO Robotic Arm

Throughout my life, I have required assistance with the most basic tasks. Things like scratching my head, getting myself a drink, or picking something up off the floor are just a few items on a never-ending list of impossibilities. Fortunately, there is now technology...

The Amino Acid Diet and Its Benefits

Nutrition has always been a challenge for my daughter, Ella. And, in turn, it is a challenge for my wife and me. Due to Ella's disease, she has an increased amount of difficulty digesting long-chain fats (meats, cheeses, etc.) and she also has a hard time maintaining...

Newly Added HCP Resources