Letting Physical Therapy Students Work With SMA Patients

Students must perform multiple clinical rotations before they graduate PT or PTA school. When students come into our outpatient clinic, they are exposed to a wide variety of diagnosis. One that always baffles them is SMA. In most cases. SMA is briefly taught about in...
kiwifruit extract and SMA

SMA August Roundup: green kiwifruit extracts, abnormal fatty acid metabolism & updates on nusinersen and AVXS-101

Summer is closing with an abundance of new data on SMA. Studies aimed at understanding the disease process continue to provide information on its underlying mechanisms. At the same time, careful investigations of therapeutics are highlighting the potential of these...

Stretching Lower Extremities of SMA Patients

Your typical SMA patient spends much of their day sitting in a wheelchair. While this may be normal for them, it can cause problems with muscle tightness and soreness during their typical day. My patient, Michael, was diagnosed with severe hip, muscle, and nerve...

Transferring A Patient With SMA During Therapy

  While the majority of students in physical therapy learn how to transfer patients in school with many different assistance requirements, patients who suffer from spinal muscular atrophy usually present more of a challenge than many physical therapists come...
SMA News Roundup June 2019

Spinal Muscular Atrophy: June Bi-Monthly Roundup

Since our last roundup, there has been continued focus in the spinal muscular atrophy (SMA) literature how best to treat the disease. There also continues to be research geared toward understanding the biology of the disease, as well as on SMA management, what it is...

Improving Sitting Balance For Patients With SMA

If you are working with a patient with SMA, you will most likely find that they are in their wheelchair full time. This makes sitting balance very important for many reasons. If they have good sitting balance, this will make traveling up and down...

Spinal Muscular Atrophy: Monthly Roundup

Much of the most recent research regarding spinal muscular atrophy (SMA) has focused on understanding the mechanisms mediating the disease as well as the clinical value of different pharmaceutical interventions. There have been several reviews on the latter topic,...
Zolgensma FDA approval SMA

FDA Approves AveXis’ Gene Therapy Zolgensma to Treat SMA in Children Up to Age 2

Zolgensma, a first gene therapy for spinal muscular atrophy — and first for any chronic neurologic disease — is now an approved and potential “one-time” intravenous treatment for pre-symptomatic newborns through 2-year-olds with any type of SMA, the U.S. Food and...
sma contractures

Increasing Range of Motion in Ankles and Knees of Patients with SMA

For a patient with SMA to be able to function with their maximal amount of independence, it is important to have as much range of motion possible. As with the majority patients with SMA, my current patient with SMA spends most of his time in his wheelchair....

Orthopedics and Bracing Considerations for SMA

SMA provides myriad challenges to multiple people on the caregiving team.  As a prosthetist and orthotist, there are a few observations I have made over the years in terms of bracing considerations for SMA.  The first big question relates to whether to brace or...

Latest Articles from SMA HCP

Letting Physical Therapy Students Work With SMA Patients

Letting Physical Therapy Students Work With SMA Patients

Students must perform multiple clinical rotations before they graduate PT or PTA school. When students come into our outpatient clinic, they are exposed to a wide variety of diagnosis. One that always baffles them is SMA. In most cases. SMA is briefly taught about in...

SMA Patient Columns

My Experience with the JACO Robotic Arm

Throughout my life, I have required assistance with the most basic tasks. Things like scratching my head, getting myself a drink, or picking something up off the floor are just a few items on a never-ending list of impossibilities. Fortunately, there is now...

The Amino Acid Diet and Its Benefits

Nutrition has always been a challenge for my daughter, Ella. And, in turn, it is a challenge for my wife and me. Due to Ella's disease, she has an increased amount of difficulty digesting long-chain fats (meats, cheeses, etc.) and she also has a hard time maintaining...

Newly Added HCP Resources

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