Author Archives: BNS Staff

31 Days of SMA: Why We Will Never Give Up

Photo courtesy of Tyler and Dara Bailey Day 30 of 31 This is Tyler and Dara Bailey’s story: My wife, Dara, has never viewed her life with SMA as being different than the lives of people without it. Growing up, she had goals of going to…

31 Days of SMA: Confidence Is Key to Living With SMA

Photo courtesy of Maxwell McKnight Day 27 of 31 This is Maxwell McKnight’s (@maxwellmnight) story: Hello! My name is Maxwell. I’m 18 and have just finished my A levels. I have spinal muscular atrophy (SMA) type 2. This September, I begin my journey into…

31 Days of SMA: Valuable Lessons From a Self-advocate

Photo courtesy of Stephen Mikita Day 23 of 31 This is Stephen Mikita’s (@stevemikita) story: In 1968, I was 12 years old and had severe scoliosis. My doctors told me that my spine resembled the letter S, and I underwent spinal fusion. To…

31 Days of SMA: Her Condition Brought Us Closer

Logan Mundy and Arya Singh Day 22 of 31 This is Arya Singh and Logan Mundy’s story, as told by Logan: I was nervous for my first date with Arya. At the time, I had not even heard of spinal muscular atrophy (SMA) and knew nothing about disability…