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There are many different modalities and activities that have been successful in progressing Michael, our patient with SMA, towards reaching his goals of less pain during activities as well as increased independence. Over the past four years, we have attempted many different techniques with Michael and have noted the ones…
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During the past few weeks, my patient with spinal muscular atrophy (SMA), Michael, has been adjusting to a new wheelchair. While he’s been in his new chair, he’s had discomfort along his right hip. Due to this increase in discomfort, we have been transferring him each week out…
Michael, a spinal muscular atrophy (SMA) patient who I treat, has had his new wheelchair for about three years, although has had difficulty transitioning into it due to needed modifications. Unfortunately, the chair he had been using stopped working and he was forced to get into the new…
Over the past several months, we’ve been focusing mostly on improving comfort and flexibility for Michael, my patient who has spinal muscular atrophy (SMA), in preparation for a potential new treatment from Scholar Rock called apitegromab, which is in a Phase 3 clinical trial. The…
Many patients with spinal muscular atrophy (SMA) spend the majority of their time sitting in wheelchairs. Increased periods of sitting can lead to tailbone pain due to increased pressure on those areas. When these areas become stiff and painful, a little mobilization can lead to reduced pain and improved…
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