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With every caw of a seagull and crash of a wave against the shore, I swore I felt every stressor in my life exit my body. OK, maybe that’s a bit dramatic. But the healing powers of the beach and its background noises are something I’ll never take…

I don’t get sick often. If I feel somewhat draggy, echinacea tea usually works like a charm. When our first two children, Matthew and Katie, were born, exhaustion prevailed. I was mothering and teaching kindergarteners with orthopedic and other conditions, and I was married to…

“Let me go, Mum,” I begged. It was Day 2 of a harrowing hospital stay. My chest had been hurting and feeling tight, nonstop. I couldn’t sleep. I couldn’t eat. I was tachycardic, with a heart rate in the 120s to the 140s. I needed a urinary catheter.

Back in July, I wrote about the small apartment my mom and I used to live in before we moved into a new home when I was 13. In the new house, I have a better bedroom and bathroom, my own kitchen, and a medical supply room —…

In the “Mission: Impossible” franchise, each movie starts with Tom Cruise’s character, Ethan Hunt, opening an encrypted message that outlines his next assignment. As an agent for the Impossible Mission Force (IMF), Hunt uses his unique skills to take down global threats that are too much to…

Since I have spinal muscular atrophy (SMA), my birthday always demands a grand celebration. And this year was extraordinary. Not only am I closer to bidding farewell to my 20s, but I also had the chance to journey back to my beloved hometown, New York City, for…

Jose Flores is a motivational speaker and author from Fort Lauderdale, Florida. He shares his life with spinal muscular atrophy (SMA) type 3 on his website joseinspires.com.  Navigating a romantic relationship when one partner has SMA is a journey marked by unique challenges and profound…

It felt like fall all of last week here in the North Carolina mountains. Each year, crisp temperatures, crystal skies, and a hint of changing colors rejuvenate me, reminding me why fall is my favorite season. On the flip side, a mere taste of this spectacular time of year…

The thing about visible disabilities is that you can’t really hide them. You can try, but there’s only so much you can do when it comes to a big honking wheelchair. The internet, however, is a completely different story. There’s a freedom to it, a flexibility, that you can’t…

As I stared at the rolling green hills before me, I wondered what 8-year-old Alyssa would have thought of this moment. It was my nonprofit organization’s first charity golf tournament in almost six years, though the annual events dated back to 2010. However, the story began long before…