Columns

A new blood test may offer a faster and simpler way to reliably diagnose most cases of spinal muscular atrophy (SMA), with results available in about one hour, a study showed. The LNA-PCR assay…

To say I didn’t attempt to set my complaint about a Sephora event up for success … would be a lie. If I was posting a video on TikTok, I obviously wanted people to see it. Time…

Because I live with spinal muscular atrophy (SMA), I have used a power wheelchair for most of my life. As far as I can recall, I have had seven different chairs, each one unique…

The post Getting to Know You Survey appeared first on SMA News Today.

Proteins involved in producing histones, which help package DNA inside cells, may take on new roles in mature nerve and muscle cells, a U.S.-Polish study found. The findings could provide new clues about…

Being diagnosed with spinal muscular atrophy (SMA) 20-odd years ago was akin to a death sentence. But for the majority of my life with SMA, my health has been fairly stable. I’ve come to expect that,…

Managing a career, dating, and air travel for individuals with spinal muscular atrophy (SMA) comes down to three key tools: open communication, smart energy management, and proactive planning. These strategies were discussed during a recent…

In June, my parents and I huddled into our accessible van to head to the annual Cure SMA conference in Orlando, Florida. It’s always my most anticipated time of the year, filled with seeing friends,…

I have a really special and pretty large friendship caregiving team, which I write about a lot in this column. Because I live with SMA, I need plenty of help, and I am grateful…

This segment focuses on managing daily logistics, preserving personal independence, and using actionable planning strategies to safely navigate travel and high-stakes days. The post Segment Three: Independence & Daily Life with SMA appeared first on SMA News…