As 3-year-old Evie Bradford splashes in a shallow pool, her family cheers when she dog-paddles with all four limbs, her head bobbing above water. Less than a year ago, this little girl with spinal muscular atrophy (SMA) type 1 loved being in the water, but lay passively while…
New treatments for spinal muscular atrophy (SMA) are helping many people live longer, fuller lives, changing what it means to grow up and grow older with the condition. SMA is now being managed across all stages of life, shifting care from palliative support toward long-term health and independence. Brian…
Abe Homer’s entry into healthcare gaming technology began at Children’s Hospital Colorado, where he met a young man with advanced spinal muscular atrophy (SMA). “He was a young man in his mid-20s, who was in a…
As a licensed clinical social worker based in Amarillo, Texas, Ali Ramos uses her own experience of living with spinal muscular atrophy (SMA) type 2 to create a safe space for her clients to explore their…
New treatments for spinal muscular atrophy (SMA) are helping many people live longer, fuller lives, changing what it means to grow up — and grow older — with the condition. SMA is now being managed across all stages of life, shifting care from palliative support toward long-term health and…
Brian Lin is watching how science is improving spinal muscular atrophy (SMA) treatment today and making advancements with the potential to reshape SMA care for tomorrow. “The most significant breakthroughs actually happened fairly recently, over the…
Spinal surgery is often a major consideration for children and teens with spinal muscular atrophy (SMA) who develop scoliosis, a complication that can affect comfort, posture, and breathing. To better understand this step in SMA care, SMA News…
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