SMA UK Network Helps Patients Navigate Adulthood
People with spinal muscular atrophy (SMA) are living longer, attending college, pursuing a variety of careers, and traveling more, thanks to a combination of new disease-modifying therapies, better quality care, and improved rights for those with disabilities. It also...
Two Brothers Making the Most Out of Life With SMA
Participate in a paintball war. Meet Snoop Dogg. Be the first disabled person to go to space. These are just a few of the 40-plus items on Zarek DeMarco Elizondo’s bucket list. With his older brother, Zachary Markel Elizondo, by his side, Zarek, who has spinal...
Muscular Dystrophy Association Launches Podcast Hosted by SMA Advocate
Today, the Muscular Dystrophy Association (MDA) is officially launching its MDA Quest Podcast, which will feature conversations with neuromuscular disease patients, doctors, family, caregivers, and others touched by the community in some way. Hosted by Mindy...
Danish Family Races to Raise $2.4M for Daughter’s Zolgensma Therapy
Ayah Lundt, a 15-month-old Danish girl with spinal muscular atrophy (SMA) type 2, is helping bring the world together as her parents race to raise $2.4 million for a single dose of Zolgensma before she becomes ineligible for the treatment when she turns 2 in January....HCP — SMA News Today
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