Author Archives: Halsey Blocher

Back in November, the latest e-newsletter from We Carry Kevan (WCK) landed in my inbox, and this one included an intriguing request. They were looking for volunteers to serve as ambassadors who would promote the organization’s mission of redefining accessibility in their communities. One area where ambassadors…

I’m fairly frequently asked what the hardest part of living with SMA is, but no matter how many times I hear the question, I seldom know how to answer it. Each day brings its own unique hardships, so how I respond changes based on the struggles of that…

My mom and I enjoy treating ourselves to a relaxing afternoon of mother-daughter bonding at the nail salon from time to time. We don’t have one specific salon that we always go to. While there are some that we like better than others, we often pick one that’s in…

Somehow, it’s already been three years since I began sharing my story with you in this column. It’s been a beautiful, heartfelt adventure that I’ve thoroughly enjoyed. But I have to admit that when I invited you to pull up a chair back in 2019, I didn’t…

Somehow, it’s already been three years since I began sharing my story with you in this column. It’s been a beautiful, heartfelt adventure that I’ve thoroughly enjoyed. But I have to admit that when I invited you to pull up a chair back in 2019, I didn’t…

After moving into our new home a few months ago, members of our family made a trip to the Indiana Bureau of Motor Vehicles to update our IDs with our new address. I had another mission to accomplish while there. I wanted to register as an…

After moving into our new home a few months ago, members of our family made a trip to the Indiana Bureau of Motor Vehicles to update our IDs with our new address. I had another mission to accomplish while there. I wanted to register as an…

It’s been about two years since I got a message from a friend saying that she would miss seeing me at Turnstone, the local disability center. Earlier that day, an announcement had been made that the building would be closing for an undetermined amount of time…

It’s been about two years since I got a message from a friend saying that she would miss seeing me at Turnstone, the local disability center. Earlier that day, an announcement had been made that the building would be closing for an undetermined amount of time…

Whenever my family and I meet new SMA specialists, they’re usually rather perplexed by me. They watch in amazement and excitement as my abilities defy the expected progression for an adult with SMA type 1 — someone whose rare genetic coding says they probably shouldn’t be alive, let…