Author Archives: Halsey Blocher

Every sibling relationship is unique, but what happens when SMA gets thrown into the equation? I could tell you about its effect on my relationship with my brother, Lucas, from my own perspective, but today I want you to hear from someone else. In…

As COVID-19 vaccinations continue here in the U.S., I’m noticing that more people are venturing back out into the world and returning to a “new normal.” While I’m glad to see that we’re taking some steps in the right direction, I’m not in a hurry to get back to…

April has been a special month for me. It probably always will be because April is when I get to celebrate the anniversary of starting my dream job here at BioNews, the company that publishes this website. Last year, I dedicated a column to a…

My family and I are gathered around the television when one of our favorite shows is interrupted by a commercial. An image is shown of a young person smiling at the camera. They appear to be happy and healthy. Then the screen changes to show the same person lying…

My wheelchair van pulled up outside of a vaccination clinic downtown where I would receive my first dose of Moderna’s COVID-19 vaccine. This was one of my biggest outings in over a year. Like many in the SMA community, I made the choice to limit…

Like any proud Irish girl, I love St. Patrick’s Day. (According to Ancestry, I’m exactly 12% Irish.) I always wear customary green to mark the occasion, and I enjoy partaking in festive events. But what I love most about the day is…

As Rare Disease Day approaches on Feb. 28, many in the disability community are seizing the opportunity to share about their diseases and the many aspects of being rare. Having an entire day dedicated to this purpose is wonderful, but let’s not limit these discussions…

It’s been 10 years since my last hospitalization. I’ve waited a long time to be able to say that, because I’ve never been able to say it before. This is a feat of epic proportions for someone with SMA. It’s even crazier when I reflect on the prognosis from…

Nearly a month into 2021, I think it’s safe to say we’re all glad to have left 2020 behind us. It certainly wasn’t an easy year. Its hardships likely will go down in the history books. Around the globe, we saw a devastating pandemic, raging wildfires, and a…

Last summer, I met a new friend, Amber Bosselman, at the Virtual Cure SMA Conference. Amber is a certified life coach with a bachelor’s degree in psychology. She uses her knowledge to…