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SMA HCP News November Round-up: Risdiplam, Early Treatment, NURTURE Study

by Nisha Cooch, PhD | Nov 15, 2019

While the biggest news this week may be the success of the drug risdiplam in improving motor function in a late stage clinical trial on patients with SMA types 2 and 3,1 other important data on SMA have also been published in recent weeks. Below is a roundup of new...

Spinal Muscular Atrophy: Late October 2019 Roundup

by Michael Nace | Oct 30, 2019

Data on SMA continue to roll out. This month has shown a growing focus and understanding on issues related to nusinersen as well as newborn screening for SMA across the globe. In addition, more preclinical and translation results have been published. Below is the...

Spinal Muscular Atrophy: Mid-October 2019 Roundup

by Nisha Cooch, PhD | Oct 10, 2019

The beginning of fall has seen a steady stream of new data elucidating SMA mechanisms, as well as options for managing and treating the disease. There have also been reports of evolving efforts to optimize both SMA research and clinical care, such as through a new SMA...

Spinal Muscular Atrophy: Late-September 2019 Roundup

by Nisha Cooch, PhD | Sep 26, 2019

Summer has closed with new data and news on SMA coming to the fore. Much of the research on SMA published in recent weeks has focused on how to best treat the disease, and some new debate has emerged surrounding the relative advantages of Zolgensma versus Spinraza. At...

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Patient and Parent Perspectives on the Use of...

At the end of 2016, the U.S. Food and Drug Administration (FDA) approved nusinersen for the treatment of spinal muscular atrophy (SMA).1 […]

Speech Therapy in Spinal Muscular Atrophy

According to the American Speech-Language-Hearing Association, speech therapists work to improve human communication, swallowing […]

Spinal Muscular Atrophy: Fractures

Poor bone health is a consequence of Spinal Muscular Atrophy (SMA). Bone mineral density is significantly reduced1,2 in up to 50% of […]

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Embarking on the Journey to Find a New Wheelchair

“I was once the proud owner of a Jaguar,” is one of my go-to statements whenever I play “two truths and a lie.” If […]
Electrotherapy and Exercise Improves Motor Function in Patient With SMA Type 3, Case Study Reports

Electrotherapy combined with physical exercise may be used to improve motor function in people with spinal muscular atrophy (SMA) type 3, […]
31 Days of SMA: Physical Therapy for Adults With SMA

View this post on Instagram Day 18 of 31 Days of SMA⁣⠀ Topic: Physical Therapy ⁣⠀ ⁣⠀ This is […]

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