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In his essay for The New Yorker, “Who Am I?”, comedian Demetri Martin explores his identity both literally and figuratively. He opens by saying that he is “not a thing that is just lying around somewhere, like a…
Once every few weeks, I’m reminded of my own mortality. A lot of folks dread their period. It’s a definitively unpleasant time between the cramps and the blood and the hormonal mood swings that evoke a hangry toddler. But it’s not the period that I dread. It’s the days…
It’s so much more than the turkey. Memories of childhood Thanksgiving gatherings with grandparents, aunts, uncles, and cousins take me to a happy place. My paternal grandmother, Mammaw, wearing white socks and practical black shoes, poured sugar into the bowl for cake icing while…
Ella, 10, the youngest of our three children, is thriving. She has friends from school, in the neighborhood, and online. She sings in a community choir, and occasionally plays with her siblings. Due to Ella’s disease, spinal muscular atrophy type 2, which directly affects her…
If 2020 were a movie, it would have the aesthetic of David Lynch and the shocking twists and horrors of a Stephen King novel, and it would run the length of an unedited Peter Jackson epic. Viewers would yearn for a filmmaker like Wes Anderson to sweep…
Can I be real for a minute? Totally honest? Maybe even a little bit of a downer? I’m disappointed. 2020 was supposed to be my year. I had all sorts of plans — tattoos and writing retreats and parties, because you only graduate with a master’s degree and turn…
Thanksgiving is almost upon us. Meals are being planned, and turkeys are being purchased. The delicious smells and flavors of pumpkin and cinnamon will be consumed in many homes. And, my favorite part, thankfulness abounds: Family, good health, the food on the table, and financial stability are commonly counted…
They congregated on a beach in the mild November air. More than 50 of them stood there, wondering if they dare dip their feet into the water or remain lounging on soft sand. Not a mask in sight; not an inkling of social distancing. I suppose…
My daughter Ella was diagnosed with spinal muscular atrophy type 2 at 14 months old. Our doctor offered us the hope that although there wasn’t a treatment or cure at the time, there was equipment we could use and therapies we could engage her in to…
Certain days can only be described as “an SMA kind of day.” It happens when the power cuts off in the middle of the night, causing the BiPAP machine to stop working and the hospital bed to sink. Or,…
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