Columns

Growing up, I was a fairly well-behaved student. I did my homework. I paid attention during class. I always raised my wand (my way of raising my hand since I couldn’t physically do so) when I had a question, and I respected my teachers. In other words, I never…

Have you ever felt the sensation of the wild green thorns?  In times of overwhelming frustration, they slither toward the pit of your inner sanctuary from outer reaches. Their barbed tendrils gouge trails of apathy across the stone walls and humble cottage windows surrounding your heart.

As teens, my husband, Randy, and his brother kept bees in their family’s tiny backyard. Way back then, the protective gear was flimsy at best, and they both eventually sought less painful hobbies. The opening of a new local beekeeping store just before Randy’s retirement…

The first and last time I consulted an orthopedic surgeon, I was told I had a 50-50 chance of surviving a spinal fusion. “Her lung capacity is 24% at its highest,” the surgeon told my parents. Their faces fell. I could sense their apprehension.

I’ve dreamed of cures. Miracles that occur in the blink of an eye. One minute, I’m sitting in my wheelchair, and the next, I’m standing, walking, running. I’m wobbly on my feet, of course, and crying, because everything has changed, and I’m probably overwhelmed by the newness of it…

On the corner of Western Avenue and Birch Street, two dainty toddlers ruffled through vibrantly woven Easter baskets. A dawdling waterfall of sunlight beamed through the bay window, casting a gilded aura around their disheveled nests of Sunday-morning hair.  With contrasting hand strength, they each…

“Chewie, we’re home.”  Just as Han Solo uttered these words when he stepped aboard the Millennium Falcon in “The Force Awakens,” I felt a similar tinge of nostalgia and excitement upon returning to my favorite movie theater after an entire…

According to my mother, my columns are the first result when you Google “Evrysdi (risdiplam) denial.” Which isn’t surprising. I’ve written several scathing columns about the application process, from verifying my diagnosis to correcting blatantly false insurance claims. The squeaky wheel gets the grease, or so…

I recently ventured on safari with my heart and soul to take a look around at what growing a caregiving team means to me.  My intentions established a touchstone from which I can construct a hospitable living space for change and growth. Now that perspective…

Growing up, about the closest I got to yardwork was burying some poor mussels I’d brought back one summer from a family vacation on the Texas coast. Somehow I thought that hauling a handful or two of the already smelly critters in a shoebox of sand all the…