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My first Evrysdi-versary passed without incident. Ironic, considering how much time and effort I put into acquiring the medication. A disease-modifying treatment (DMT) for SMA is no small thing. Spinraza (nusinersen) took the community by storm, with patients around the world petitioning their insurance companies. I wasn’t immune to…
My first Evrysdi-versary passed without incident. Ironic, considering how much time and effort I put into acquiring the medication. A disease-modifying treatment (DMT) for SMA is no small thing. Spinraza (nusinersen) took the community by storm, with patients around the world petitioning their insurance companies. I wasn’t immune to…
Spring is a magical time of awakenings, a flagship season of gentle nudges and reminders from the natural world outside my window. Lately, I’ve felt like a honeybee, and I happened to be visited by one in the midst of enjoying springtime vibes the other day.
Spring is a magical time of awakenings, a flagship season of gentle nudges and reminders from the natural world outside my window. Lately, I’ve felt like a honeybee, and I happened to be visited by one in the midst of enjoying springtime vibes the other day.
Editor’s note: This column discusses suicide. Please find resources for help at the end of the column. I wish the call had been an April Fools’ prank. As readers of my column will know, I’ve been very vocal about the need for SMA patients here in Singapore to…
Editor’s note: This column discusses suicide. Please find resources for help at the end of the column. I wish the call had been an April Fools’ prank. As readers of my column will know, I’ve been very vocal about the need for SMA patients here in Singapore to…
Last Sunday, my dad took me by surprise. “I don’t have anything planned for today,” he said as he helped me get out of bed. “Let’s do something fun.” I assumed he meant something simple, like getting ice cream or dropping by the grocery store for a bouquet of…
Last Sunday, my dad took me by surprise. “I don’t have anything planned for today,” he said as he helped me get out of bed. “Let’s do something fun.” I assumed he meant something simple, like getting ice cream or dropping by the grocery store for a bouquet of…
Today, I thought about the question, “How can I become a better advocate?” For the first time, I realized that I’d taken part in advocacy activities even when I didn’t know it. This is how it happened. I like to buy and download turn-based PC games. In these,…
Today, I thought about the question, “How can I become a better advocate?” For the first time, I realized that I’d taken part in advocacy activities even when I didn’t know it. This is how it happened. I like to buy and download turn-based PC games. In these,…
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