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From left, Tonje, Morten, and baby Gulla. (Photo courtesy of Tonje Larsen) Day 6 of 31 This is Tonje Larsen’s (@rollin_with_tonye) story: Hi, my name is Tonje. I’m 23 years old and was born with spinal muscular atrophy (SMA) type 2. I…
Jose and his wife, Andrea. (Photo courtesy of Jose Flores) Day 5 of 31 This is Jose Flores’s (@joseinspires) story: A barrier is any obstacle that prevents movement or access. My name is Jose Flores, and I’m a 45-year-old from Florida, a global…
Photo courtesy of Chessa Birrell Day 4 of 31 This is Chessa Birrell’s story: My name is Chessa Birrell. I am 26 years old and have SMA type 2. I live with my parents in Powder Springs, Georgia. I graduated from the University…
Megan DeJarnett, left in wheelchair, with her husband, Jake, and her sons Bronx, left, and Shai. (Photo courtesy of Megan DeJarnett) Day 2 of 31 This is Megan DeJarnett’s (@megandejarnett) story: I remember being around 10 years old when I heard the doctor…
(Photo courtesy of Shaniqua Granby) Day 1 of 31 This is Shaniqua Granby’s (@shaniqua__niqua) story: A few people have said to me, “You know, Shaniqua, it’s so cool that you are an attorney,” and while I do believe I accomplished a fantastic objective…
View this post on Instagram Day 31 of 31 Days SMA Topic: Fashion and SMA This is…
From candlelighting events to storytelling, efforts to mark Spinal Muscular Atrophy Awareness Month, observed each August, are underway to heighten awareness of the rare genetic disease and raise funds to fight it. Supporters are participating in a range of activities such as changing their social media profile photo,…
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