Author Archives: Joanna Buoniconti

Guest Voice: Episodes of tachycardia have become my new normal

Being diagnosed with spinal muscular atrophy (SMA) 20-odd years ago was akin to a death sentence. But for the majority of my life with SMA, my health has been fairly stable. I’ve come to expect that,…

Guest Voice: Tempering expectations and keeping hope alive

For much of the time, the reality for those of us living with a chronic condition like SMA entails having something dangled in front of our faces, just out of reach — which isn’t challenging to do, considering…