Author Archives: Halsey Blocher

A few years ago, I rolled into the local disability center, as I often did at the time, for a day of exercise, crafting, and volunteer work. But because it was Christmas, I’d brought something extra. My nurse carried a stack of cards I’d made for…

Throughout my life, the doctors, nurses, and other medical personnel who have cared for me have filled out a collective mountain of paperwork. I’m willing to bet that far more of my days have been documented than not. Most charting is electronic now, but there are certainly boxes full…

Tim Burton’s “The Nightmare Before Christmas” is a family favorite around here, with my brother being the biggest fan of us all. He even dressed up as the movie’s main character, Jack Skellington, for Halloween one year. This beloved stop-motion animated movie has become a pop culture…

Growing up, I loved the library’s summer reading program. I’ve always been a bookworm, so logging hours of reading and being rewarded for my hobby was a highly satisfying endeavor. My favorite prizes were, of course, new books. Last year, I was thrilled to learn that this program from…

I just turned 26 on Sept. 26, which makes it my golden birthday. Never heard of a golden birthday? You’re not alone. It’s believed they were invented by American author and teacher Joan Bramsch in the 1950s. She celebrated each of her five children’s golden birthdays, and the…

Our cat, Toby, waltzed into our family over a decade ago for what was intended as a temporary arrangement. She won our affection quickly, and we decided to welcome her into our home indefinitely. Not that she needed an invitation to stay. Toby said she owned the place, and…

On the second Saturday of every August, the setting sun fades and is replaced by the ethereal glow of candlelight. Around the world, the SMA community comes together for a twilight vigil to remember our loved ones who have departed and to honor those living with SMA. Candle-bearing…

Who doesn’t love the luxuries and amenities of vacation? Swimming pools, complimentary breakfast, new sights and experiences, and a freshly made bed to return to after a day of relaxation or adventure. Disabled people and our families also appreciate these comforts, but when you’re vacationing with…

Our family loves vacationing by the sea, and we’ve recently returned from a trip to Roanoke Island, off the coast of North Carolina. Although we’ve passed through before, this trip was our first time vacationing in North Carolina. It won’t be the last. Waterfront views, fresh…

Every disabled person, including those with SMA, has likely received the well-intentioned compliment of being told they’re inspirational, but it’s not a label that everyone is comfortable wearing. This fact leads me to wonder why. Who should we take inspiration from, and how should we communicate it? We…