This segment focuses on managing daily logistics, preserving personal independence, and using actionable planning strategies to safely navigate travel and high-stakes days. The post Segment Three: Independence & Daily Life with SMA appeared first on SMA News…
Tori highlights the diverse and nuanced experiences of living with spinal muscular atrophy (SMA), emphasizing that there is much more to life than the medical aspects of the diagnosis. The post Tori Hunter: How her life looks…
This segment explores the challenges of dating with SMA, providing language tools to comfortably frame medical details and communicate needs to new partners with confidence. The post Segment Two: Relationships & Disclosure appeared first on SMA News Today.
This segment highlights strategies for managing workplace fatigue, navigating the accommodation request process, and using self-advocacy scripts to establish a sustainable work environment. The post Segment One: Career & Accommodations with SMA appeared first on SMA News Today.
The post Rarely Speaking: SMA Beyond the Clinic Webinar appeared first on SMA News Today.
Melissa Wright, MD, PhD, discusses common signs and symptoms of SMA, including proximal muscle weakness, changes in gait, falls, tremors, and muscle fasciculations. What are the signs of SMA muscle weakness? The post Signs…
Melissa Wright, MD, PhD, discusses early signs of adult-onset SMA, including progressive fatigue, weakness, falls, and hand tremors. When should fatigue or finger tremors prompt a closer look for SMA?…
Melissa Wright, MD, PhD, discusses how to evaluate hypotonia and weakness in infants and recognize clinical signs that may raise suspicion for SMA. What patterns and developmental cues are crucial…
Melissa Wright, MD, PhD, explains how functional testing, symptoms, and individual trends can help guide decisions about changing SMA treatment. Â How do you know when a patient needs a treatment adjustment? The…
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