Author Archives: Alyssa Silva

Actually, My Disease Does Define Me

Recently, someone I know commented, “Alyssa doesn’t let her disease define her.” I absolutely understood where they were coming from. After all, I have always been determined. I have always been that girl who thrives in a challenge and loves nothing more than being told she can’t do something.

I’m Remembering to Prioritize My Mental Health

During the height of the pandemic last year, a steady influx of people often reached out to me to check on my health. It was quite admirable. Friends, family members, and even people I had lost touch with would call or text for status updates, and I truly felt…

Reflecting on My Diagnosis Day, 30 Years Later

Last week marked 30 years since my diagnosis day. So many emotions resurfaced as I reflected on the past three decades and all that has happened in terms of medical breakthroughs, challenges I’ve overcome, and how my prognosis has changed since I was first diagnosed.

A Sibling’s Perspective on Life With SMA

On April 10, the United States will celebrate Siblings Day, a day to honor and appreciate the bond we share with our siblings. I happen to have the best one around, so I asked if he’d do an interview with me to share his perspective on living with…

My Unsolved Symptoms Add Flair to My Rare

These days, I’ve been soaking up all the true crime content I can set my eyes and ears on. Documentaries, podcasts, “Dateline” episodes that I now look forward to every Friday night — I’ve become engrossed in real-life stories about missing persons and murders. More specifically, I have become…

What Being Homebound for a Year Really Feels Like

The day after Christmas marked one year since I began this whole self-quarantine thing. And the most unnerving part about it is that I have yet to receive my trophy to commemorate this milestone. That may be a bit of an exaggeration, but there is logic behind my reasoning.