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Safety For Both Therapist and SMA Patient

Safety For Both Therapist and SMA Patient

While working with a patient with SMA, you may find it beneficial for the patient, as well as the therapist, to have at least two people available to help in the treatment if you plan to transfer to a therapy table for different exercises. For Michael, we transfer him...

Improving Muscle Length to Prepare For Future SMA Muscle Targeted Therapy

Improving Muscle Length to Prepare For Future SMA Muscle Targeted Therapy

In preparation for a muscle-targeted treatment, which is currently under development by Scholar Rock for patients with SMA, we have continued to work to maintain the strength improvements Michael has made, but we have also shifted to increasing his range of motion in...

Helping To Control Swelling In Lower Extremities For SMA Patients

Helping To Control Swelling In Lower Extremities For SMA Patients

Swelling in the lower extremities is a common occurrence in people who are diagnosed with SMA, secondary to different reasons. Some reasons include lack of muscle contraction and the ability to pump fluid out of their feet, as well as positional limitations during the...

Q&A Between Physical Therapist and SMA Patient

Q&A Between Physical Therapist and SMA Patient

Michael and I have been working together for the past couple of years, and while speaking with each other about my March HCP article, we thought that doing a question-and-answer article would be interesting. Michael would ask me 5 questions, and I would ask him 5...

Radiology Related SMA Resources
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    Zolgensma, or onasemnogene abeparvovec, is an adeno-associated virus vector-based gene therapy that was approved by the FDA in May 2019. […]

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  • Preparing for Injection Days

    In Michael Morale’s personal YouTube channel smajourney51, he did a video this week about preparing for injection days. He does things […]

  • Recapping my First Maintenance Dose

    Yesterday I went in for my first maintenance dose (so my fifth injection). Overall it went well, though it did take a little more time than […]