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Reality of SMA and Physical Therapy

Reality of SMA and Physical Therapy

Before meeting Michael, my patient with SMA, I had a lack in knowledge of what SMA really was, and what kind of goals were realistic to set for him to meet. I had no idea what my expectations should be regarding his progress and how to meet those expectations. I was...

SBMA Seen to Affect Skeletal Muscles First, Not Motor Neurons

SBMA Seen to Affect Skeletal Muscles First, Not Motor Neurons

Although a disease of motor neurons, nerve cells of the spinal cord and brainstem, the earliest signs of spinal and bulbar muscular atrophy (SBMA) are in skeletal muscles, according to data from a mouse study. These findings suggest that changes in muscle strength and...

Benefits of Long Sitting Unsupported In a Patient With SMA

Benefits of Long Sitting Unsupported In a Patient With SMA

When working with a patient with SMA, you will most likely find that their sitting balance is not optimal while sitting unsupported, due to a lack of core strength. While every patient has different strengths and weaknesses, as well as abilities and disabilities, it...

Radiology Related SMA Resources
  • Administering Zolgensma

    Zolgensma, or onasemnogene abeparvovec, is an adeno-associated virus vector-based gene therapy that was approved by the FDA in May 2019. […]

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Radiology Related Forum Topics

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  • Preparing for Injection Days

    In Michael Morale’s personal YouTube channel smajourney51, he did a video this week about preparing for injection days. He does […]

  • Recapping my First Maintenance Dose

    Yesterday I went in for my first maintenance dose (so my fifth injection). Overall it went well, though it did take a little more time than […]