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SMA Patients May Have Difficulties Laying on Their Stomachs

SMA Patients May Have Difficulties Laying on Their Stomachs

When patients are limited in their range of motion, this can lead to an inability to tolerate certain positions. For example, Michael, who has been diagnosed from an early age with SMA, is severely lacking hip and knee extension, making it hard for him to assume a...

The Dangers of Pressure Ulcers For SMA Patients

The Dangers of Pressure Ulcers For SMA Patients

People with SMA spend most of their time sitting in a wheelchair. Because of this, they are at an increased risk of developing pressure ulcers. This is due to the increased time spent with weight-bearing through a specific area, usually, a bony prominence, such as the...

Radiology Related SMA Resources
  • Administering Zolgensma

    Zolgensma, or onasemnogene abeparvovec, is an adeno-associated virus vector-based gene therapy that was approved by the FDA in May 2019. […]

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  • Preparing for Injection Days

    In Michael Morale’s personal YouTube channel smajourney51, he did a video this week about preparing for injection days. He does things […]

  • Recapping my First Maintenance Dose

    Yesterday I went in for my first maintenance dose (so my fifth injection). Overall it went well, though it did take a little more time than […]