Featured Nursing Articles on HCP

SMA HCP News November Round-up: Risdiplam, Early Treatment, NURTURE Study

SMA HCP News November Round-up: Risdiplam, Early Treatment, NURTURE Study

While the biggest news this week may be the success of the drug risdiplam in improving motor function in a late stage clinical trial on patients with SMA types 2 and 3,1 other important data on SMA have also been published in recent weeks. Below is a roundup of new...

Spinal Muscular Atrophy: Late October 2019 Roundup

Spinal Muscular Atrophy: Late October 2019 Roundup

Data on SMA continue to roll out. This month has shown a growing focus and understanding on issues related to nusinersen as well as newborn screening for SMA across the globe. In addition, more preclinical and translation results have been published.  Below is the...

Spinal Muscular Atrophy: Mid-October 2019 Roundup

Spinal Muscular Atrophy: Mid-October 2019 Roundup

The beginning of fall has seen a steady stream of new data elucidating SMA mechanisms, as well as options for managing and treating the disease. There have also been reports of evolving efforts to optimize both SMA research and clinical care, such as through a new SMA...

Spinal Muscular Atrophy: Late-September 2019 Roundup

Spinal Muscular Atrophy: Late-September 2019 Roundup

Summer has closed with new data and news on SMA coming to the fore. Much of the research on SMA published in recent weeks has focused on how to best treat the disease, and some new debate has emerged surrounding the relative advantages of Zolgensma versus Spinraza. At...

Nursing Related SMA Resources

  • Administering Zolgensma

    Zolgensma, or onasemnogene abeparvovec, is an adeno-associated virus vector-based gene therapy that was approved by the FDA in May 2019. […]

  • Zolgensma: Caregiver Counseling

    As Zolgensma was recently approved by the FDA – in May 2019 – there has been little caregiver education on the therapy and how […]

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