Featured Nursing Articles on HCP
Safety For Both Therapist and SMA Patient

Safety For Both Therapist and SMA Patient

While working with a patient with SMA, you may find it beneficial for the patient, as well as the therapist, to have at least two people available to help in the treatment if you plan to transfer to a therapy table for different exercises. For Michael, we transfer him...

Improving Muscle Length to Prepare For Future SMA Muscle Targeted Therapy

Improving Muscle Length to Prepare For Future SMA Muscle Targeted Therapy

In preparation for a muscle-targeted treatment, which is currently under development by Scholar Rock for patients with SMA, we have continued to work to maintain the strength improvements Michael has made, but we have also shifted to increasing his range of motion in...

Helping To Control Swelling In Lower Extremities For SMA Patients

Helping To Control Swelling In Lower Extremities For SMA Patients

Swelling in the lower extremities is a common occurrence in people who are diagnosed with SMA, secondary to different reasons. Some reasons include lack of muscle contraction and the ability to pump fluid out of their feet, as well as positional limitations during the...

Q&A Between Physical Therapist and SMA Patient

Q&A Between Physical Therapist and SMA Patient

Michael and I have been working together for the past couple of years, and while speaking with each other about my March HCP article, we thought that doing a question-and-answer article would be interesting. Michael would ask me 5 questions, and I would ask him 5...

Nursing Related SMA Resources
  • Administering Zolgensma

    Zolgensma, or onasemnogene abeparvovec, is an adeno-associated virus vector-based gene therapy that was approved by the FDA in May 2019. […]

  • Zolgensma: Caregiver Counseling

    As Zolgensma was recently approved by the FDA – in May 2019 – there has been little caregiver education on the therapy and how best to […]

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  • Returning to a Neurologist

    With the approval of risdiplam (I still don’t know how to spell the treatment’s new name), I’ve decided to go back to a neurologist. […]

  • Spinraza Dose #7

    I go in for my seventh Spinraza injection tomorrow. Like I’ve said before, it’s just kind of become another part of my routine at this […]

  • Risdiplam Shows Potential in Babies and Adults with SMA

    Risdiplam, an investigational oral therapy, shows higher SMN protein levels in both pediatric and adult SMA patients, according to an […]

  • Preparing for Injection Days

    In Michael Morale’s personal YouTube channel smajourney51, he did a video this week about preparing for injection days. He does things […]