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SMA Patients May Have Difficulties Laying on Their Stomachs

SMA Patients May Have Difficulties Laying on Their Stomachs

When patients are limited in their range of motion, this can lead to an inability to tolerate certain positions. For example, Michael, who has been diagnosed from an early age with SMA, is severely lacking hip and knee extension, making it hard for him to assume a...

SMA Patients May Have Difficulties Laying on Their Stomachs

SMA Patients May Have Difficulties Laying on Their Stomachs

When patients are limited in their range of motion, this can lead to an inability to tolerate certain positions. For example, Michael, who has been diagnosed from an early age with SMA, is severely lacking hip and knee extension, making it hard for him to assume a...

The Dangers of Pressure Ulcers For SMA Patients

The Dangers of Pressure Ulcers For SMA Patients

People with SMA spend most of their time sitting in a wheelchair. Because of this, they are at an increased risk of developing pressure ulcers. This is due to the increased time spent with weight-bearing through a specific area, usually, a bony prominence, such as the...

Neurology Related SMA Resources
  • Administering Zolgensma

    Zolgensma, or onasemnogene abeparvovec, is an adeno-associated virus vector-based gene therapy that was approved by the FDA in May 2019. […]

  • Zolgensma: Caregiver Counseling

    As Zolgensma was recently approved by the FDA – in May 2019 – there has been little caregiver education on the therapy and how best to […]

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  • Returning to a Neurologist

    With the approval of risdiplam (I still don’t know how to spell the treatment’s new name), I’ve decided to go back to a neurologist. […]

  • Spinraza Dose #7

    I go in for my seventh Spinraza injection tomorrow. Like I’ve said before, it’s just kind of become another part of my routine at this […]

  • Risdiplam Shows Potential in Babies and Adults with SMA

    Risdiplam, an investigational oral therapy, shows higher SMN protein levels in both pediatric and adult SMA patients, according to an […]

  • Preparing for Injection Days

    In Michael Morale’s personal YouTube channel smajourney51, he did a video this week about preparing for injection days. He does things […]