Social Worker Resource Page One Archives - HCP

Patient and Parent Perspectives on the Use of Nusinersen for Spinal Muscular Atrophy

At the end of 2016, the U.S. Food and Drug Administration (FDA) approved nusinersen for the treatment of spinal muscular atrophy (SMA).1 Because of the high threshold for FDA approval, an abundance of data on nusinersen and its physiological effects on SMA patients...

What is Meaningful Change in Spinal Muscular Atrophy?

by Michael Nace | Jan 7, 2019 | Neurologists Resource Page Two, Neurologists Resource Pages, Nursing Resource Page One, Nursing Resource Pages, Orthopedics Resource Page One, Orthopedics Resource Pages, Pediatricians Resource Page One, Pediatricians Resources, Pulmonologist Resource Page One, Pulmonologist Resource Pages, Social Worker Resource Page One, Social Worker Resource Pages

A tool that is commonly used to evaluate motor function in spinal muscular atrophy (SMA) patients is the Hammersmith Functional Motor Scale (HFMSE).1 Given the extensive use of this tool, particularly for clinical trial research that aims to identify and develop...

Spinal Muscular Atrophy: Awareness and Attitudes

by Michael Nace | Dec 20, 2018 | Neurologists Resource Pages, Nursing Resource Page One, Nursing Resource Pages, Nutritionist Resource Page One, Nutritionist Resource Pages, Orthopedics Resource Page One, Orthopedics Resource Pages, Pediatricians Resource Page One, Pediatricians Resources, Physical Therapists Resource Page One, Physical Therapists Resource Pages, Pulmonologist Resource Page One, Pulmonologist Resource Pages, Radiology Resource Page Three, Radiology Resources, Social Worker Resource Page One, Social Worker Resource Pages, Urologist Resource Page Two, Urologist Resources

There is a paucity of information on awareness of and attitudes towards spinal muscular atrophy (SMA) and medical approaches to the disease.1,2 However, research into what is known about SMA has revealed that the public is largely unfamiliar with SMA, and even...

Spinal Muscular Atrophy: Effects on Home, School, and Leisure

by Michael Nace | Dec 19, 2018 | Nutritionist Resource Pages, Pediatricians Resource Page One, Pediatricians Resources, Social Worker Resource Page One, Social Worker Resource Pages

Those with spinal muscular atrophy (SMA) face psychological and social challenges that often hinder quality of life.1 Even those who are able to live in their homes and participate in school, employment, and leisure activities are burdened with challenges related to...

Spinal Muscular Atrophy: Maximizing Quality of Life

by Michael Nace | Oct 4, 2018 | Genetic Counselor Resource Page One, Genetic Counselor Resource Pages, Nursing Resource Page One, Nursing Resource Pages, Nutritionist Resource Page One, Nutritionist Resource Pages, Orthopedics Resource Pages, Pediatricians Resource Page One, Pediatricians Resources, Physical Therapists Resource Page One, Physical Therapists Resource Pages, Social Worker Resource Page One, Social Worker Resource Pages

Children with Spinal Muscular Atrophy (SMA) have complex medical needs which can lead to diminished quality of life.1 Historically, patients diagnosed with SMA and their families report significant stress and a low quality of life.2-4 It is incorrect to assume that...

Signs and Symptoms

One of the pathological hallmarks of spinal muscular atrophy (SMA) is the degeneration of anterior horn cells in the spinal cord and motor nuclei in the lower brainstem.1 Alpha motor neurons are preferentially affected, so the disease is limited to the motor system...