by Michael Nace | Jan 7, 2019 | Nursing Resource Page Two, Nursing Resource Pages, Nutritionist Resource Page Two, Nutritionist Resource Pages, Orthopedics Resource Page Two, Orthopedics Resource Pages, Pediatricians Resource Page Two, Pediatricians Resources
Those with spinal muscular atrophy (SMA) often suffer from sleep disorders, but the specific reasons for sleep disturbances vary. For instance, some studies on SMA report sleep disturbances resulting from breathing disorders like sleep apneas, whereas others report...
by Michael Nace | Nov 28, 2018 | Nursing Resource Page Two, Nursing Resource Pages, Nutritionist Resource Page Two, Nutritionist Resource Pages, Urologist Resource Page Three, Urologist Resources
Nephrolithiasis is not a classic or well-documented symptom of spinal muscular atrophy (SMA). Nonetheless, anecdotal reports from physicians, patients, and caregivers suggest that patients with SMA may suffer from kidney stones more frequently than an otherwise...
by Michael Nace | Oct 15, 2018 | Nursing Resource Page Three, Nursing Resource Pages, Nutritionist Resource Page Two, Nutritionist Resource Pages
Patients with Spinal Muscular Atrophy (SMA) have nutritional needs that vary depending on their ages, the severity of their weakness (non-sitter versus sitter), and the acuity of their situation.1 Chronic Hydration Needs SMA is associated with dysphagia and gastric...
by Michael Nace | Oct 15, 2018 | Nutritionist Resource Page Two, Nutritionist Resource Pages
The nutritional management of patients with progressive neuromuscular diseases like Spinal Muscular Atrophy (SMA) is complex and is achieved optimally with an individualized approach from a multidisciplinary care team.1,2 Patients with SMA need nutritional monitoring...
by Michael Nace | Oct 5, 2018 | Genetic Counselor Resource Page Two, Genetic Counselor Resource Pages, Nutritionist Resource Page Two, Nutritionist Resource Pages, Pediatricians Resource Page Two, Pediatricians Resources, Social Worker Resource Page Two, Social Worker Resource Pages
Psychological support for patients and families is a critical but often neglected component of care in Spinal Muscular Atrophy (SMA).1 Families will have psychological support needs that differ depending on where they are in their respective healthcare odysseys, from...
by Michael Nace | Sep 10, 2018 | Genetic Counselor Resource Page Two, Genetic Counselor Resource Pages, Nutritionist Resource Page Two, Nutritionist Resource Pages, Orthopedics Resource Page Two, Orthopedics Resource Pages, Pediatricians Resources, Physical Therapists Resource Page Two, Physical Therapists Resource Pages
Spinal Muscular Atrophy (SMA) is a congenital, progressive neuromuscular disease with the most common age of onset in early childhood.1 Childhood is a period of significant growth and development. While patients with some forms of SMA (type 0 and 1) will experience...
