Columns

Reflecting on My Diagnosis Day, 30 Years Later

Last week marked 30 years since my diagnosis day. So many emotions resurfaced as I reflected on the past three decades and all that has happened in terms of medical breakthroughs, challenges I’ve overcome, and how my prognosis has changed since I was first diagnosed.

Angels of a Feather May Flock Together

Just over two years after our baby Jeffrey died from spinal muscular atrophy, my brother-in-law, Steven, passed away. My husband, Randy, our two children, Matthew and Katie, and I made the long drive back to our old stomping grounds in Texas, for our first funeral of a…

Pride Cometh Before the Side Effects

It’s not that I didn’t think I’d have side effects. I hoped. Just like I hoped that COVID-19 would wind down by late last summer; just like I hoped “The Rise of Skywalker” would be, like, tolerable. But I knew better. It was a vaccine, after all, and a…