awareness

SMA families struggle with health information literacy: Study

Patients with spinal muscular atrophy (SMA) in China and their caregivers have low levels of health information literacy, or the ability to access, understand, evaluate, and use information to make health decisions, according to a study. In interviews, patients and caregivers indicated they had difficulties in assessing and…

Ira Walker, living with SMA type 2, named MDA National Ambassador

The Muscular Dystrophy Association (MDA) has chosen Ira Walker, a Florida resident living with spinal muscular atrophy (SMA) type 2, as this year’s national ambassador. In this new role, the 39-year-old Walker will share his story nationwide, with an aim of raising awareness of the MDA’s mission…