Author Archives: Sherry Toh

‘I Ain’t There Yet, but I’m Healing’

Humans like to believe that progress is linear. We were in the Dark Ages, then we weren’t. We were largely illiterate, then we read so much we created demand for the printing press. We didn’t have smartphones and international access to each other via the internet, and…

For the Love Who Stayed on My Darkest Nights

After I was hired as a columnist for SMA News Today, a stack of onboarding documents was sent to my email. I spent an entire day reading them and signing my name systematically. But among the documents, one titled “Writing Advice” drew my deeper attention. I’m not usually one…

A Plea for Singapore to Approve SMA Treatments

Imagine there’s a Singaporean girl with SMA. She’s exhausted by chronic neuropathy, medication, and feeling like she’s worth less than her able-bodied peers. So exhausted, in fact, she struggles with writing about her disability for SMA Awareness Month. “Google is free. Why should I have to make myself uncomfortable…

I Don’t Want a World Without SMA. Here’s Why

When I was diagnosed with SMA, my parents were confronted with a pivotal choice: stay in Singapore or move the three of us to the U.S., where they’d heard there might be an experimental gene therapy that could treat me. It’s a decision that would have altered the course…