Author Archives: Sherry Toh

To Me, Eugenics Proves That Society Is Inaccessible

How would you expect someone with a disability to react upon reading an account of a nondisabled man essentially telling a disabled woman she shouldn’t exist? Would you expect them to react with despair? Fear? Rage? I reacted by laughing hysterically. The chronic pain and increasing fatigue caused by…

Houston, We Have a(n Intersectionality) Problem

If Broadway’s Lin-Manuel Miranda wrote a musical based on my column, the word “value” would be a leitmotif with its own melody. Anyone who reads my column regularly will know I talk about the value of disabled folks often, that it’s what every one of my arguments boils…

‘Don’t Quit Before the Miracle Happens’

“I’m doing good, I’m on some new s**t/ Been saying ‘yes’ instead of ‘no.’” These lyrics opened Taylor Swift’s song “the 1” and her 2020 album “Folklore.” I thought them fitting to open my first column of the new year…

What Will Become of Me Once I’m 23?

“Lord, what will become of me/ Once I’ve lost my novelty?” was the original lyric sung in Taylor Swift’s “Nothing New,” a bonus track she included with her recent remaster of her 2012 album, “Red.” Yet, for some reason I heard her…

As an Adult With SMA, I Need Access to Evrysdi, Too

Let’s start this story about Evrysdi (risdiplam) from the beginning. About a year ago, the chronic neuropathy in my scalp that had been bothering me for three years worsened to a point of concern. It started as a mild and slightly nauseating throbbing from the back of my…