Self-doubt and the endless pursuit of a fulfilling life
In the true fashion of a passionate actor, Neil Newbon opens a TEDx Talk by imitating an ape — a choice inspired by his role voicing the lead ape in the video game “Planet of the…
Author Archives: Sherry Toh
Why actors with SMA deserve greater media representation, part 2
Last in a series. Read part one. “How are you feeling today, Sherry?” my director asked. We were about to rehearse for a play we’re working on. I’m still new to performing, and SMA makes…
Why actors with SMA deserve greater media representation, part 1
First in a series. Maybe it (sadly) goes without saying, maybe it doesn’t, but if you Google “spinal muscular atrophy actor,” you won’t find a single SMA patient with a long filmography filled with recognizable projects.
My whirlwind adventure of getting lost in Singapore
“Time for your whirlwind 20s, babe!” When my best friend and fellow SMA News Today columnist, Brianna Albers, said that a month ago, I couldn’t have imagined how much I would feel her words. She’d said it…
My whirlwind adventure of getting lost in Singapore
“Time for your whirlwind 20s, babe!” When my best friend and fellow SMA News Today columnist, Brianna Albers, said that a month ago, I couldn’t have imagined how much I would feel her words. She’d said it…
My life of privilege while living with SMA
What do my doctors and dates have in common? It’s that I’ve asked most of them this question: “Am I the first person with SMA you’ve met?” Surprisingly, I’ve heard a few doctors tell me no. I may…
Why I want to be admitted to ‘The Pitt’ as a young adult with SMA
I once read that fear is the other side of the coin to excitement, pleasure, or comfort. Without any research into whether the statement is true or false (it’s true), I…