Author Archives: Connie Chandler

To find a team of caregivers, I had to rethink my ‘ideal’ criteria

In my favorite movie of all time, “The Princess Bride,” there’s a scene I love because I can relate to it and have learned a valuable life lesson from it. And today…

Why can’t my new wheelchair help me dance?

I recently got a new wheelchair! Thanks to the good folks at Numotion, I’m happy with the upgrades, including a new seat cushion, a phone holder, and headlights. My friends have been asking me what it’s like to be…

When SMA symptoms make me feel ‘Muppety,’ I rely on my friends

“I’m feeling a bit Muppety today.” It’s an adjective I made up for myself years ago (meaning “like a Muppet”) because there are just some aspects of having a neuromuscular disability that are hard to…