Author Archives: Brianna Albers

As SMA Treatments Advance, History Has Its Eyes on Us

I’ve dreamed of cures. Miracles that occur in the blink of an eye. One minute, I’m sitting in my wheelchair, and the next, I’m standing, walking, running. I’m wobbly on my feet, of course, and crying, because everything has changed, and I’m probably overwhelmed by the newness of it…

The Evrysdi Chronicles: Full Speed Ahead

According to my mother, my columns are the first result when you Google “Evrysdi (risdiplam) denial.” Which isn’t surprising. I’ve written several scathing columns about the application process, from verifying my diagnosis to correcting blatantly false insurance claims. The squeaky wheel gets the grease, or so…

Unlike Hamilton, I Threw Away My Shot

My first instinct was to scream. After weeks of waiting, and days of researching clinics and time slots, I finally received the prized text message: “Brianna and 2 caregivers have been selected for the COVID vaccine.” I screamed, then sent an all-caps message to a group chat with friends…

My SMA Friends Remind Me That It’s OK to Rest

You already know that for the longest time, I didn’t want friends with SMA. I was young and desperate to be seen as “cool” (whatever that means), but more than that, I was dumb. I thought that being seen with “people like me” would ruin my street cred…