Striving for a longer period of stability with my home nursing staff
At the beginning of the year, I felt a sense of calm because I finally had enough nurses to complete my home nursing staff. There was no pressure to find a replacement for a nurse…
Author Archives: Ari Anderson
I’m working to resolve some home equipment malfunctions
One of my rules is that nurses cannot care for me when they’re sick. Although this creates challenges, I don’t want to risk exposure. Because I live with SMA, the repercussions of a virus or other cause of…
My home health nursing shortage was suddenly resolved
If you’ve read at least a few of my columns, you know that I hold on tightly to hope. It’s what keeps me plowing through the rough terrain of problems and crises, as my faith tells me that, one…
Temperature regulation is challenging, but vital with SMA
It’s been almost a year since I moved into my new house, and I’m still working to get everything the way I want and need it. I’ve always loved warm temperatures. As long as I stay hydrated, the…
This Christmas, I’m thankful to have resolved some health complications
Thanksgiving and Christmas are holidays that make me grateful. I am thankful for the birth of my Lord and Savior, Jesus, and how he not only brought me through all the events of this year in one…
A tribute to my mom, who wears many hats while managing my care
Every morning, after relieving the night nurse, my mom walks toward my bed. “Snookums!” she lovingly calls out when she sees that my eyes are open. It’s a nickname that comes straight from her…
When seemingly small changes turn into something much bigger
It’s incredible how seemingly small changes can lead to something that turns out to be much bigger. Let’s explore this idea through my experience with SMA. In February, I moved into a new house, where we…
Factors that help nurses stay in long-term home healthcare
In my previous column, I discussed how nurses are recruited and hired by a home health agency, as well as the interview and training processes necessary to work on my case. In this column, I’d like to…
My experience can teach others about home health nursing
Of the 43 years that I’ve been on my SMA journey, home health nurses have accompanied me for 39 years. I know a lot about home healthcare, particularly how registered nurses and licensed practical nurses work in…
I’m working hard to overcome my current obstacles
Everyone experiences times when they feel overwhelmed by problems to fix, regardless of whether they have SMA, as I do. My life right now is a work in progress, and there’s nothing wrong with that. I’m currently addressing…
Recent Posts
- The logistics of hugging a friend with SMA
- Problems with swallowing seen for SMA children despite early treatment
- The woes of adding a new ingredient to my medicine cocktail
- Genentech stops emugrobart program for SMA after clinical trial results
- 17-year-old advocate shares her NMOSD story to raise awareness