Spinal Muscular Atrophy: Mid-October 2019 Roundup

The beginning of fall has seen a steady stream of new data elucidating SMA mechanisms, as well as options for managing and treating the disease. There have also been reports of evolving efforts to optimize both SMA research and clinical care, such as through a new...
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Spinal Muscular Atrophy: Late-September 2019 Roundup

Summer has closed with new data and news on SMA coming to the fore. Much of the research on SMA published in recent weeks has focused on how to best treat the disease, and some new debate has emerged surrounding the relative advantages of Zolgensma versus Spinraza....
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Letting Physical Therapy Students Work With SMA Patients

Students must perform multiple clinical rotations before they graduate PT or PTA school. When students come into our outpatient clinic, they are exposed to a wide variety of diagnosis. One that always baffles them is SMA. In most cases. SMA is briefly taught about in...
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kiwifruit extract and SMA

SMA August Roundup: green kiwifruit extracts, abnormal fatty acid metabolism & updates on nusinersen and AVXS-101

Summer is closing with an abundance of new data on SMA. Studies aimed at understanding the disease process continue to provide information on its underlying mechanisms. At the same time, careful investigations of therapeutics are highlighting the potential of these...
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Stretching Lower Extremities of SMA Patients

Your typical SMA patient spends much of their day sitting in a wheelchair. While this may be normal for them, it can cause problems with muscle tightness and soreness during their typical day. My patient, Michael, was diagnosed with severe hip, muscle, and nerve...
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Transferring A Patient With SMA During Therapy

  While the majority of students in physical therapy learn how to transfer patients in school with many different assistance requirements, patients who suffer from spinal muscular atrophy usually present more of a challenge than many physical therapists come...
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nutrition in SMA

Key to a Healthy SMA Diet is Variety

Diet is one of the key factors for healthy growth and development in children with spinal muscular atrophy (SMA).  Often, the quality of the overall diet may be overlooked in favor of a single nutrient or food that comes with curative claims.  Over the last few...
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Physical Therapy: Making Progress with a Patient with SMA

In Physical Therapy, our goal is to improve independence and return the patient back to within functional limits. With my current patient with SMA, his goal for physical therapy is to improve his core strength and neck strength. I am the first to admit, I was a...
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kidney stones

Kidney Stones and Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is an autosomal recessive, hereditary disease with a reported prevalence of 1 in 11,000 live births.[1]  As the disease affects motor neurons, the clinical manifestations relate to muscular weakness and atrophy.  The specific clinical...
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Recovering from Pneumonia with SMA: How Diaphragmatic Breathing and Abdominal Strengthening Aides Recovery

 According to the article "Spinal Muscular Atrophy1," "with SMA the spared diaphragm, combined with weakened intercostal muscles, results in paradoxical breathing. Also with the involvement of bulbar motor neurons often tongue fasciculation, poor suck and swallow...
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Latest Articles from SMA HCP

Spinal Muscular Atrophy: Mid-October 2019 Roundup

Spinal Muscular Atrophy: Mid-October 2019 Roundup

Oct 10, 2019

The beginning of fall has seen a steady stream of new data elucidating SMA mechanisms, as well as options for managing and treating the disease. There have also been reports of evolving efforts to optimize both SMA research and clinical care, such as through a new SMA...

Spinal Muscular Atrophy: Late-September 2019 Roundup

Spinal Muscular Atrophy: Late-September 2019 Roundup

Sep 26, 2019

Summer has closed with new data and news on SMA coming to the fore. Much of the research on SMA published in recent weeks has focused on how to best treat the disease, and some new debate has emerged surrounding the relative advantages of Zolgensma versus Spinraza. At...

SMA Patient Columns

My Experience with the JACO Robotic Arm

Throughout my life, I have required assistance with the most basic tasks. Things like scratching my head, getting myself a drink, or picking something up off the floor are just a few items on a never-ending list of impossibilities. Fortunately, there is now...
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The Amino Acid Diet and Its Benefits

Nutrition has always been a challenge for my daughter, Ella. And, in turn, it is a challenge for my wife and me. Due to Ella's disease, she has an increased amount of difficulty digesting long-chain fats (meats, cheeses, etc.) and she also has a hard time maintaining...
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