SMA News for Health Care Providers - HCP

Assisted Bridge Exercise Along With Hip Abductor And Adductor Muscle Strengthening (Part 2)

Working with a patient with SMA is not all that different from working with any other patient. Your plan of care advances and changes while working with the patient and making observations as you see fit to the patient’s overall wellbeing. To get Michael positioned...

SMA HCP News November Round-up: Risdiplam, Early Treatment, NURTURE Study

While the biggest news this week may be the success of the drug risdiplam in improving motor function in a late stage clinical trial on patients with SMA types 2 and 3,1 other important data on SMA have also been published in recent weeks. Below is a roundup of new...

Spinal Muscular Atrophy: Late October 2019 Roundup

Data on SMA continue to roll out. This month has shown a growing focus and understanding on issues related to nusinersen as well as newborn screening for SMA across the globe. In addition, more preclinical and translation results have been published. Below is the...

Performing An Assisted Bridge Exercise For Patients With SMA (Part 1)

With a patient like Michael, who has SMA, it can be a challenge to continue growing their treatment plan by presenting new exercises that help them reach their goals. Often times we resort to starting a new exercise and modifying it depending on Michael’s...

Key to a Healthy SMA Diet is Variety

Diet is one of the key factors for healthy growth and development in children with spinal muscular atrophy (SMA). Often, the quality of the overall diet may be overlooked in favor of a single nutrient or food that comes with curative claims. Over the last few years,...

Kidney Stones and Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is an autosomal recessive, hereditary disease with a reported prevalence of 1 in 11,000 live births.[1] As the disease affects motor neurons, the clinical manifestations relate to muscular weakness and atrophy. The specific clinical...

Recovering from Pneumonia with SMA: How Diaphragmatic Breathing and Abdominal Strengthening Aides Recovery

According to the article "Spinal Muscular Atrophy1," "with SMA the spared diaphragm, combined with weakened intercostal muscles, results in paradoxical breathing. Also with the involvement of bulbar motor neurons often tongue fasciculation, poor suck and swallow with...

The Common Cold, Antibiotics and SMA

Our experience with SMA is a unique one. As parents of a 9 year-old with SMA, being medical professionals has given us somewhat of an advantage over finding doctors, medications, and treatments for our son. We hope to share a little of our experience and opinion with...

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Assisted Bridge Exercise Along With Hip Abductor And Adductor Muscle Strengthening (Part 2)

Nov 27, 2019

Working with a patient with SMA is not all that different from working with any other patient. Your plan of care advances and changes while working with the patient and making observations as you see fit to the patient’s overall wellbeing. To get Michael positioned...

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SMA HCP News November Round-up: Risdiplam, Early Treatment, NURTURE Study

Nov 15, 2019

While the biggest news this week may be the success of the drug risdiplam in improving motor function in a late stage clinical trial on patients with SMA types 2 and 3,1 other important data on SMA have also been published in recent weeks. Below is a roundup of new...

« Older Entries

SMA Patient Columns

My Experience with the JACO Robotic Arm

Throughout my life, I have required assistance with the most basic tasks. Things like scratching my head, getting myself a drink, or picking something up off the floor are just a few items on a never-ending list of impossibilities. Fortunately, there is now technology...

The Amino Acid Diet and Its Benefits

Nutrition has always been a challenge for my daughter, Ella. And, in turn, it is a challenge for my wife and me. Due to Ella's disease, she has an increased amount of difficulty digesting long-chain fats (meats, cheeses, etc.) and she also has a hard time maintaining...

Newly Added HCP Resources

FDA Approves AveXis’ Gene Therapy Zolgensma to Treat SMA in Children Up to Age 2

Zolgensma, a first gene therapy for spinal muscular atrophy — and first for any chronic neurologic disease — is now […]
What is Spinal Muscular Atrophy (SMA)?

Spinal Muscular Atrophy (SMA) is a congenital neuromuscular disorder characterized most prominently by progressive muscle atrophy […]
Spinal Muscular Atrophy: Prognosis

The disease course and prognosis of spinal muscular atrophy (SMA) depends heavily on the clinical classification in a particular patient. […]
Spinal Muscular Atrophy: Differential Diagnosis – Childhood Onset (> 6 months and older)

Spinal Muscular Atrophy (SMA) that presents after 6 months of age will include the second most common presentation of SMA, type 2 SMA, and […]
Spinal Muscular Atrophy Differential Diagnosis (Prenatal/Neonatal Onset)

Spinal Muscular Atrophy (SMA) types 0 and 1 should be considered in the differential diagnosis of every newborn and infant < 6 months […]

Assisted Bridge Exercise Along With Hip Abductor And Adductor Muscle Strengthening (Part 2)

SMA HCP News November Round-up: Risdiplam, Early Treatment, NURTURE Study

Spinal Muscular Atrophy: Late October 2019 Roundup

Performing An Assisted Bridge Exercise For Patients With SMA (Part 1)

Key to a Healthy SMA Diet is Variety

Kidney Stones and Spinal Muscular Atrophy

Recovering from Pneumonia with SMA: How Diaphragmatic Breathing and Abdominal Strengthening Aides Recovery